About: Spinal muscular atrophy care in the COVID‐19 pandemic era

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An Entity of Type : schema:ScholarlyArticle, within Data Space : covidontheweb.inria.fr associated with source document(s)

Attributes	Values
type	Academic Article research paper schema:ScholarlyArticle
isDefinedBy	Covid-on-the-Web dataset
has title	Spinal muscular atrophy care in the COVID‐19 pandemic era
Creator	Smith, \| Kuntz, Nancy Parsons, Julie Butterfield, J Castro, Diana Ciafaloni, Emma Connolly, Anne John, \| Mathews, Katherine Mercuri, Eugenio Rao, K Russell, \| Vamshi, \| Veerapandiyan, Aravindhan Richard, \| Brandsema, F Finkel, S Kapil Arya, \| Servais, \|
Source	Medline; PMC
abstract	The coronavirus disease 2019 (COVID‐19) pandemic has resulted in reorganization of healthcare settings affecting the delivery of clinical care to patients with spinal muscular atrophy (SMA). There is a concern that patients with SMA may be at increased risk of manifesting severe symptoms of COVID‐19. Currently approved therapies for SMA improve survival and motor function; however, their delivery requires an increased exposure to the health system and a dedicated healthcare team. In this study, we discuss consensus recommendations pertaining to care of SMA patients during the pandemic. We highlight that SMA treatments should not be perceived as elective. Decisions regarding the delay of treatments should be made with consideration of the potential risks of COVID‐19 exposure and the risk of that delay. We emphasize the importance of collaborative treatment decisions between the patient, family, and healthcare provider, considering any geographic‐ or institution‐specific policies and precautions for COVID‐19.
has issue date	2020-05-03(xsd:dateTime)
bibo:doi	10.1002/mus.26903
bibo:pmid	32329921
has license	no-cc
sha1sum (hex)	c51d5e3505d551a978f380c9f5b1868874612fdf
schema:url	https://doi.org/10.1002/mus.26903
resource representing a document's title	Spinal muscular atrophy care in the COVID‐19 pandemic era
has PubMed Central identifier	PMC7264534
has PubMed identifier	32329921
schema:publication	Muscle Nerve
resource representing a document's body	covid:c51d5e3505d551a978f380c9f5b1868874612fdf#body_text
is schema:about of	named entity 'dedicated' named entity 'risks' named entity 'healthcare' named entity 'RISKS' named entity 'PERCEIVED' named entity 'HEALTHCARE' named entity 'MOTOR FUNCTION' named entity 'REORGANIZATION' named entity 'CONSENSUS' named entity 'AFFECTING' named entity 'INCREASED RISK' named entity 'APPROVED' named entity 'pandemic' named entity 'Decisions' named entity 'healthcare provider' named entity 'SMA' named entity 'patients' named entity 'coronavirus disease 2019' named entity 'spinal muscular atrophy' named entity 'clinical care' named entity 'COVID' named entity 'Spinal muscular atrophy' named entity 'delay' named entity 'medical conditions' named entity 'nusinersen' named entity 'fever' named entity 'COVID-19' named entity 'Social distancing' named entity 'Biogen' named entity 'NBS' named entity 'diarrhea' named entity 'United States' named entity 'comorbidity' named entity 'SMA' named entity 'SMA' named entity 'co-morbidities' named entity 'fatigue' named entity 'intrathecally' named entity 'SARS-CoV-2' named entity 'telehealth' named entity 'COVID' named entity 'physical therapy' named entity 'nusinersen' named entity 'SMA' named entity 'public health emergency' named entity 'health and wellbeing' named entity 'COVID-19 pandemic' named entity 'acute respiratory distress syndrome' named entity 'spread of COVID-19' named entity 'NBS' named entity 'supportive care' named entity 'headache' named entity 'Europe' named entity 'SMA' named entity 'severe acute respiratory syndrome coronavirus' named entity 'Newborn screening' named entity 'SMA' named entity 'shortness of breath' named entity 'speech therapies' named entity 'virus' named entity 'maintenance dose' named entity 'NBS' named entity 'NBS'

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