About: COVID-19: Putting the General Data Protection Regulation to the Test

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An Entity of Type : schema:ScholarlyArticle, within Data Space : covidontheweb.inria.fr associated with source document(s)

Attributes	Values
type	Academic Article research paper schema:ScholarlyArticle
isDefinedBy	Covid-on-the-Web dataset
has title	COVID-19: Putting the General Data Protection Regulation to the Test
Creator	Schulz, Peter Sanchez, Travis Celi, Leo Buyx, Alena McLennan, Stuart van den Heuvel, Henk
Source	Medline; PMC
abstract	The coronavirus disease (COVID-19) pandemic is very much a global health issue and requires collaborative, international health research efforts to address it. A valuable source of information for researchers is the large amount of digital health data that are continuously collected by electronic health record systems at health care organizations. The European Union’s General Data Protection Regulation (GDPR) will be the key legal framework with regard to using and sharing European digital health data for research purposes. However, concerns persist that the GDPR has made many organizations very risk-averse in terms of data sharing, even if the regulation permits such sharing. Health care organizations focusing on individual risk minimization threaten to undermine COVID-19 research efforts. In our opinion, there is an ethical obligation to use the research exemption clause of the GDPR during the COVID-19 pandemic to support global collaborative health research efforts. Solidarity is a European value, and here is a chance to exemplify it by using the GDPR regulatory framework in a way that does not hinder but actually fosters solidarity during the COVID-19 pandemic.
has issue date	2020-05-29(xsd:dateTime)
bibo:doi	10.2196/19279
bibo:pmid	32449686
has license	cc-by
schema:url	https://doi.org/10.2196/19279
resource representing a document's title	COVID-19: Putting the General Data Protection Regulation to the Test
has PubMed Central identifier	PMC7265798
has PubMed identifier	32449686
schema:publication	JMIR Public Health Surveill
resource representing a document's body	covid:PMC7265798#body_text
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