About: Suspension and resumption of kidney transplant programs during the COVID‐19 pandemic: perspectives from patients, caregivers and potential living donors‐a qualitative study

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About: Suspension and resumption of kidney transplant programs during the COVID‐19 pandemic: perspectives from patients, caregivers and potential living donors‐a qualitative study Goto Sponge NotDistinct Permalink

An Entity of Type : schema:ScholarlyArticle, within Data Space : covidontheweb.inria.fr associated with source document(s)

Attributes	Values
type	Academic Article research paper schema:ScholarlyArticle
isDefinedBy	Covid-on-the-Web dataset
has title	Suspension and resumption of kidney transplant programs during the COVID‐19 pandemic: perspectives from patients, caregivers and potential living donors‐a qualitative study
Creator	Australia, Ma, Baumgart, Amanda Coates, Toby Guha, Chandana Tong, Allison Campbell, Scott Chadban, Steven Isbel, Nicole Kanellis, John Scholes-Robertson, Nicole
Source	Medline; PMC
abstract	BACKGROUND: Many countries have suspended kidney transplantation programs during the COVID‐19 pandemic because of concerns for patient safety and the shortage of healthcare resources. This study aimed to describe patient, family member and potential donor perspectives on the suspension and resumption of kidney transplant programs due to COVID‐19. METHODS: We conducted seven online focus groups involving 31 adult kidney transplant candidates (n=22), caregivers (n=4) and potential donors (n=5). Transcripts were analyzed thematically. RESULTS: We identified five themes: cascading disappointments and devastation (with subthemes of shattering hope, succumbing to defeat, regret and guilt); helplessness and vulnerability (fear of declining health, confronted by the threat of and change in dialysis, disconnected from healthcare, susceptibility to infective complications); stress from uncertainty (confusion from conflicting information, unable to forward plan), exacerbating burdens (incurring extra financial costs, intensifying caregiver responsibilities), and sustaining health through the delay (protecting eligibility, relying on social support, adapting to emerging modalities of care). CONCLUSIONS: During the suspension of kidney transplantation programs, patients felt medically vulnerable because of declining health, susceptibility to infection and reduced access to care. There is a need to address health vulnerabilities, disappointment, uncertainty and additional burdens arising from the suspension of kidney transplantation programs.
has issue date	2020-07-08(xsd:dateTime)
bibo:doi	10.1111/tri.13697
bibo:pmid	32640048
has license	no-cc
sha1sum (hex)	7ed39c40a69a5bddcb33ff78ba3373fc5b0df9a5
schema:url	https://doi.org/10.1111/tri.13697
resource representing a document's title	Suspension and resumption of kidney transplant programs during the COVID‐19 pandemic: perspectives from patients, caregivers and potential living donors‐a qualitative study
has PubMed Central identifier	PMC7361590
has PubMed identifier	32640048
schema:publication	Transpl Int
resource representing a document's body	covid:7ed39c40a69a5bddcb33ff78ba3373fc5b0df9a5#body_text
is schema:about of	named entity 'donors' named entity 'patients' named entity 'COVID' named entity 'perspectives' named entity 'describe' named entity 'patient safety' named entity 'kidney transplant' named entity 'kidney transplant' named entity 'videoconferencing' named entity 'elective surgery' named entity 'nephrologists' named entity 'dialysis' named entity 'immunosuppression' named entity 'dialysis' named entity 'infection' named entity 'Australia' named entity 'hospital settings' named entity 'lupus' named entity 'FSGS' named entity 'dialysis' named entity 'kidney transplantation' named entity 'Reflux nephropathy' named entity 'infection' named entity 'kidney transplantation' named entity 'eligibility for transplant' named entity 'purposive sampling' named entity 'chronic kidney disease' named entity 'immunosuppression' named entity 'Kidney transplantation' named entity 'hemodialysis' named entity 'dialysis' named entity 'The University of Sydney' named entity 'immunosuppressants' named entity 'kidney' named entity 'kidney transplant' named entity 'virus' named entity 'infection' named entity 'COVID-19' named entity 'stigma' named entity 'kidney' named entity 'dialysis' named entity 'Australia' named entity 'infection' named entity 'kidney transplantation' named entity 'kidney' named entity 'kidney transplant' named entity 'infection' named entity 'ICU beds' named entity 'kidney transplantation' named entity 'kidney transplant' named entity 'COVID-19' named entity 'anxiety' named entity 'self-monitoring' named entity 'Facebook' named entity 'screening tests' named entity 'kidney transplant' named entity 'comorbid conditions' named entity 'peak body' named entity 'healthcare worker' named entity 'infection' named entity 'immunosuppressants' named entity 'immunosuppression' named entity 'infection' named entity 'Kidney transplant' named entity 'COVID-19' named entity 'living donor' named entity 'self-monitoring' named entity 'donor kidney' named entity 'immunosuppressed' named entity 'purposive sampling' named entity 'dialysis'

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