About: Genomics and Infectious Diseases: Expert Perspectives on Public Health Considerations regarding Actionability and Privacy

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An Entity of Type : schema:ScholarlyArticle, within Data Space : covidontheweb.inria.fr associated with source document(s)

Attributes	Values
type	Academic Article research paper schema:ScholarlyArticle
isDefinedBy	Covid-on-the-Web dataset
has title	Genomics and Infectious Diseases: Expert Perspectives on Public Health Considerations regarding Actionability and Privacy
Source	Medline; PMC
abstract	There is growing evidence that human genetics plays a significant role in shaping human responses to infectious diseases. For instance, individuals' genetic susceptibility or resistance to infectious disease is likely to affect disease transmission. Yet little attention has been paid to the ethical, legal, and social implications of research in genomics and infectious disease, despite the unique ethical issues that arise in this arena. This article presents results from a pilot study exploring ethics in research on human genetics and response to HIV and other infectious diseases and is focused on perspectives from expert stakeholders. Whereas chairs of institutional review boards, biobank directors, and researchers in genomics and infectious disease expressed similar views about research privacy in the context of a public health emergency, they expressed different perspectives about the role that public health considerations ought to play in the return of individual results to research participants. These perspectives highlight the need to emphasize the importance of broad dialogue for helping various parties navigate the ethically complex current and future challenges of genomics and infectious disease research.
has issue date	2020-05-18(xsd:dateTime)
bibo:doi	10.1002/eahr.500051
bibo:pmid	32421947
has license	no-cc
sha1sum (hex)	57f494b5a3cae162fe0ef74f2ef4bb7ac668fe67
schema:url	https://doi.org/10.1002/eahr.500051
resource representing a document's title	Genomics and Infectious Diseases: Expert Perspectives on Public Health Considerations regarding Actionability and Privacy
has PubMed Central identifier	PMC7276751
has PubMed identifier	32421947
schema:publication	Ethics Hum Res
resource representing a document's body	covid:57f494b5a3cae162fe0ef74f2ef4bb7ac668fe67#body_text
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