About: Registry of patients with congenital bleeding and COVID‐19 in madrid

Facets (new session)
Description
Metadata
Settings
- owl:sameAs
- Inference Rule:

About: Registry of patients with congenital bleeding and COVID‐19 in madrid Goto Sponge NotDistinct Permalink

An Entity of Type : schema:ScholarlyArticle, within Data Space : covidontheweb.inria.fr associated with source document(s)

Attributes	Values
type	Academic Article research paper schema:ScholarlyArticle
isDefinedBy	Covid-on-the-Web dataset
title	Registry of patients with congenital bleeding and COVID‐19 in madrid
Creator	Yuste, Jiménez Alvariño, Gutiérrez Barcenilla, García Bañares Mj, Blanco Coll, Butta Collazo, Plaza De La Corte Rodríguez H, Ec, Merchán Garrido, Romero González L, Pérez González-Zorrilla, E Manzano, Monzón Martínez, Trelles Mi, Rivas Román, Álvarez Salces, Martín
source	Medline; PMC
abstract	INTRODUCTION: We present the first registry of patients with congenital bleeding disorders and COVID‐19. The study has been carried out in the Community of Madrid, which has the highest number of cases in Spain. The objective is to understand the incidence of COVID‐19, the course of the disease if it occurs and the psychosocial and occupational impact on this population. METHODS: We included 345 patients (246 of haemophilia, 69 of von Willebrand Disease, 2 rare bleeding disorders and 28 carriers of haemophilia). A telephone survey was used to collect the data. RESULTS: 42 patients presented symptoms suggestive of infection by COVID‐19 and in 6 cases the disease was confirmed by RT‐PCR. The cumulative incidence of our series was 1.73%. It is worth noting the complexity of the management of COVID‐19 in two patients on prophylaxis with non‐factor replacement therapy. Adherence to the prescribed treatment was maintained by 95.5% of patients. Although 94% were independent for daily living activities, 42.4% had a recognised disability and 58% required assistance, provided by the Madrid Haemophilia Association (Ashemadrid) in 75%of cases. Only 4.4% of consultations were held in person. CONCLUSIONS: Patients with congenital bleeding disorders infected with SARS‐CoV‐2presented a mild course of the disease that did not require admission. Their identification and treatment by a specialist team from a Haemophilia Treatment Center is essential to make a correct assessment of the risk of haemorrhage/thrombosis.COVID‐19 had a major impact on the psychosocial aspects of these patients which must be remedied with recovery plans.
has issue date	2020-06-10(xsd:dateTime)
bibo:doi	10.1111/hae.14089
bibo:pmid	32524712
has license	no-cc
sha1sum (hex)	1d954dc5ba8ce48fd5538649be97ea1d99aa8452
schema:url	https://doi.org/10.1111/hae.14089
resource representing a document's title	Registry of patients with congenital bleeding and COVID‐19 in madrid
has PubMed Central identifier	PMC7307027
has PubMed identifier	32524712
schema:publication	Haemophilia
resource representing a document's body	covid:1d954dc5ba8ce48fd5538649be97ea1d99aa8452#body_text
is schema:about of	named entity 'word count' named entity 'EMM' named entity 'data collection' named entity 'HdlC' named entity 'data collection' named entity 'Word count' named entity 'ECM' named entity 'COVID' named entity 'blood disorder' named entity 'cumulative incidence' named entity 'neurological symptoms' named entity 'HTC' named entity 'COVID-19' named entity 'Community of Madrid' named entity 'blood disorders' named entity 'HIV treatment' named entity 'COVID-19' named entity 'clinical trials' named entity 'informed consent' named entity 'HTC' named entity 'HIV' named entity 'coagulation' named entity 'pathology' named entity 'COVID' named entity 'blood disorder' named entity 'COVID-19' named entity 'prophylaxis' named entity '95% confidence interval' named entity 'questionnaire' named entity 'Pharmacovigilance' named entity '1, 2' named entity 'SARS-CoV-2' named entity 'follow-up' named entity 'Cumulative incidence' named entity '95% confidence interval' named entity 'World Federation of Haemophilia' named entity 'HTC' named entity 'Madrid' named entity 'thrombotic' named entity 'Spain' named entity 'COVID' named entity 'rehabilitation physicians' named entity 'prophylaxis' named entity 'viral load' named entity 'infection' named entity 'HIV' named entity 'HIV-positive' named entity 'COVID-19' named entity 'COVID' named entity 'activities of daily living' named entity 'HULP' named entity 'HULP' named entity 'emtricitabine' named entity 'social workers' named entity 'cumulative incidence' named entity 'emergency department' named entity 'COVID-19' named entity 'CBDs' named entity 'La Paz' named entity 'health care' named entity 'HULP' named entity 'haemorrhagic' named entity 'infection' named entity 'diagnostic tests' named entity 'symptom' named entity 'COVID-19'

Faceted Search & Find service v1.13.91 as of Mar 24 2020

Alternative Linked Data Documents: Sponger | ODE Content Formats:

RDF

ODATA

Microdata

About

OpenLink Virtuoso version 07.20.3229 as of Jul 10 2020, on Linux (x86_64-pc-linux-gnu), Single-Server Edition (94 GB total memory)
Data on this page belongs to its respective rights holders.
Virtuoso Faceted Browser Copyright © 2009-2025 OpenLink Software